A drug targeted at improving survival with ALS and another that can slow the disease’s progression are advancing towards discussions with the FDA. These developments have been made possible by the support generated from Pete Frates and his viral ice bucket challenge, which sparked a movement and raised millions for ALS research.
Dr. Merit Cudkowicz, Frates’ doctor at Mass General Hospital, highlighted the impact of the ice bucket challenge on ALS research and the advances made in the field as a result. The Healey & AMG Center for ALS, which opened in 2019, has seen developments such as the approval of gene therapy and the testing of multiple drugs simultaneously to speed up the development of treatments for ALS patients.
Two drugs tested at the center in the past three years have shown positive results in either prolonging survival or slowing disease progression, leading to discussions with the FDA. Frates’ vision and determination in raising awareness and funding for ALS research have paved the way for these research advancements.
Frates’ mother, Nancy Frates, continues to advocate for ALS research in honor of her son’s legacy. The 10th-anniversary celebration at Fenway Park brought together supporters, including government officials and sports figures, to reflect on Frates’ impact and to renew the commitment to finding a cure for ALS. Despite Frates’ passing, his spirit and dedication to this cause continue to inspire progress and hope for the future.
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